Helping autistic people manage increased anxiety and stress under lockdown
Autism Berkshire was awarded a total of £9,000 in grants from the BCF Vital for Berkshire Coronavirus Fund in 2020-21, to help it meet the challenges of the pandemic, the lockdowns and beyond.
Founded in 1990, Autism Berkshire is a leading autism charity in Berkshire, delivering specialist services, training and social activities across the county for people living with autism.
Many autistic children, young people and adults rely on established routines to manage their lives or suffer from anxiety, so the series of lockdowns and shifting range of restrictions on daily life in 2020-21 posed a constant challenge for them.
The initial grant of £4,000, in the spring of 2020, helped to cover the costs of adapting and delivering autism and benefits advice services, including workshops and courses, online during the lockdown period. A further grant of £5,000 in March 2021 helped fund the charity’s social groups for autistic adults.
One-to-one family advice and counsel
The charity saw a surge in demand for advice about heightened anxiety and related effects on mental health, as well as how to address challenging behaviour in children. Social distancing rules meant that Home Visits to advise families one-to-one had to move to video calls. One parent emailed after a session to talk about her autistic daughter to say: “It was so useful and helped me understand more why she does things, which has helped me help her!”
Workshops and courses
Places at autism advice workshops were in high demand from the beginning of the pandemic. More fathers attended than was the case pre-pandemic, with several saying that home working allowed them more control over how they used their time, so they could fit a 90-minute workshop into their day with the agreement of their employers.
Feedback from those taking part was overwhelmingly positive. Said a mother: “I can’t thank you enough. Lockdown has been the most challenging time I have experienced so far as a parent and the online seminars I have attended have changed life at home. I finally feel like I understand my son.”
Support for teenagers and their families
Autism Berkshire became the first training organisation approved by the National Autistic Society to run its Teen Life course for parents and carers online, with senior family support worker Julia Cox then advising other trainers across the UK to help them also make the switch.
Benefits and financial advice
The Benefits Service advisers moved from face-to-face advice appointments to video calls and ran online versions of Understanding Your Benefits Rights workshops, which help parents, carers and autistic adults to apply for benefits and explain how the service can support appeals, including at hearings held by telephone conferencing, due to court closures during the pandemic.
Social and sport activities
The charity’s social groups for autistic adults – the 197 Club in Reading and the Bear with Me group in Maidenhead – continued to meet online throughout the pandemic and lockdowns, providing the only regular social contact for a number of their members.
In subsequent lockdowns, when government guidance permitted some indoor activities for children with disabilities, Autism Berkshire provided trampolining sessions for children with autism. These were hosted by Bracknell Trampoline Centre and the Pinewood Centre near Crowthorne. Alongside the social aspect, these boost motor skills and core body strength.
As a result of the successful transition to online delivery of support services, Autism Berkshire’s chief executive officer, Jane Stanford-Beale, became one of just 22 winners of a National Census 2021 Purple Plaque.
“The support from Berkshire Community Foundation has been invaluable - both at the start of the pandemic when we needed to transform how we worked in a matter of weeks, and a year on, when the social groups are vital to support autistic adults as lockdown eases. What others see as ‘getting back to normal’ still brings many challenges with it for autistic people.”
Jane Stanford-Beale, CEO of Autism Berkshire
Story of support
Rachel Reid first contacted Autism Berkshire for advice after her 15-year-old son Rio was referred for an autism assessment in summer 2020 and she was told by the NHS that support was available from the charity.
She said: “We were offered a one-to-one call with Julia. She was really helpful, listened to what we said, understood what we described and were experiencing, the things we saw and Rio’s behaviours.
“She recommended lots of great resources and some really useful videos made by a young autistic guy. When I showed one to Rio it was quite an enlightening moment – he looked at it and said ‘wow, that’s me’. He really identified with it and started to open up a bit more about things that he was finding difficult.”
Rachel also took part in an online Teen Life course, for parents of children aged 10 to 16, in the autumn of 2020.
She added: “We felt so very welcomed and supported. I’m just very grateful and confident that there’s help there to navigate things. I think I would really be floundering if I didn’t have Autism Berkshire to go back to.”
In its 2020-2021 financial year, Berkshire Community Foundation made £3.2 million in grants funding to 230 charities and groups across the county, helping to make a difference to 1.5 million people in Berkshire.
These were made as part of the Vital for Berkshire – Coronavirus Fund – aiming to help charities and community groups address the urgent issues and needs arising from the first lockdown.
Find out more: Read other case studies of how we have supported charities’ response to the Coronavirus crisis in Berkshire.
Do more: Donate to our Vital for Berkshire Appeal to help us continue to address the most pressing needs in our local community.
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